Category Archives: Uncategorized

Sorry, this update is long overdue.
The last we posted, Eli was admitted into the hospital due to a fever which turned out to be typhlitis.  This required ‘gut rest’ and white blood counts to return.  Gut rest required us to … Continue reading →

Not the news we were hoping for.  But also not a surprise.  Eli has typhlitis.  There is inflammation in his bowel.  This will be treated with antibiotics, fluids, IV nutrition to allow “gut rest” to continue, pain medication to keep him … Continue reading →

After spending Friday getting platelets, Saturday in the ER due to medication error and sticky lines, on Sunday very early in the morning, Eli was admitted for fever/low counts. Looks like he’ll be here for a bit as we figure … Continue reading →

48 hours after coming home from surgery, we are back here at CHW for Chemo round 5.
The good news: Eli’s surgery went really well so everyone (surgery & oncology) felt that he is strong enough to begin chemo today. Just … Continue reading →

Here’s an update for those not on Facebook.
Surgery went well and was quick. The oncology team was surprised when they heard from Dr. Lal so soon after surgery. He thinks he removed close to 100% of the tumor. Yeah!! The … Continue reading →

It’s almost surgery time.  Eli goes in early Tuesday morning to have the tumor removed from his right adrenal gland.  Eli has just one tumor and it is fairly small in size compared to what many other children with neuroblastoma … Continue reading →

We’re still here at Children’s Hospital of WI.  You’ll remember that we brought Eli to the ER on Wednesday night.  He had a low grade fever during the day which spiked to a high fever in the afternoon.  They eventually … Continue reading →

Eli handled his 4th chemo round with minimal side effects. He surprised me by waking up our first day home with energy and excitement to play. We were able to take advantage of him feeling well by attending birthday celebrations … Continue reading →

Last week was rough.  We we were at the hospital almost every day preparing for Eli’s stem cell collection.  We were also still giving him his daily injection of neupogen to boost his white counts before collection.  (By we, I mean … Continue reading →

Today is the day. This feels big and important.  And maybe a little scary. We’ve been watching Eli’s counts this week to determine the optimal time to collect his stem cells. He will need these for his next phase, which … Continue reading →