Monthly Archives: April 2016

A HUGE thank you to my dear friend Kelly Kons for spearheading this project, along with input and help from Julie Goyette, Kate Burke, Stacie Payne, and Dana Ostrenga.  We truly appreciate your ideas and work put in to make … Continue reading →

“Life is not fair.”  I’ve said that phrase to the kids a lot over the years. In response to things like –

I had to wait until I was 3 1/2 years old to chew gum!
I always get the hand me … Continue reading →

Eli had his MIBG scan today.  Yesterday we stopped in to the radiology department for his radioactive tracer.  In most cases, neuroblastoma attracts the MIBG tracer.  The scanner detects the radioactivity from the MIBG, therefore allowing you to see where the … Continue reading →

By the end of this week we should have Eli’s treatment plan in place.  Today he began taking lugol drops (iodine), which he will continue to do 3x/day for the next 8 days.  These drops will protect his thyroid from the … Continue reading →

Thankful.  Humbled.  Grateful.  Astonished.  Blessed.
Just a few of the words that come to mind when I stop and think about the outpouring of support we have received in the last 24 hours.  We thank you from the bottom of our … Continue reading →

The last week has been incredibly hard as we watched Eli go through many tests, scans, and bloodwork to understand what is causing his fevers and limping.  Our worst fear was confirmed.  I am dumbfounded that for the second time … Continue reading →