Just Hanging Out

We’re still here at Children’s Hospital of WI.  You’ll remember that we brought Eli to the ER on Wednesday night.  He had a low grade fever during the day which spiked to a high fever in the afternoon.  They eventually admitted Eli, and we got to ‘check-in’ to our familiar floor on the HOT unit.  HOT stands for Hematology, Oncology, and Transplant.  This is a dedicated floor at Children’s for kids with these diseases.

For the last three days and four nights, Eli has been treated for low blood counts (because of chemo) and possible infection (because of low blood counts).

There are three things that the doctors look at from the blood labs, which are white blood cells, hemoglobin (red blood cells), and platelets.  Chemo does some pretty good damage on these counts, to the point where white cells are almost non-existent in his blood.  Hence, this is why there is the extreme concern when there is a fever.

So how do we treat the low counts?  Eli has a Neulasta shot around 24 hours after he completes chemo.  This will set the white blood cell factory into overdrive once it starts building cells.  Although, it doesn’t help it recover any sooner after chemo.  We still have to wait for his bone marrow to recover to make the white cells.  For the red cells and platelets, Eli has received 3 bags of blood and 2 platelets over the last week.  Thank you so much to all those who donate!!!  If you have always thought about donating, know that this is truly life saving for Eli.  He has had so many blood and platelet transfusions so far.  Any one of those times could have turned much worse without the transfusions available.

To combat any possible infection, Eli has been on antibiotics since he arrived at the HOT unit.  The labs didn’t show any bacteria; however, the antibiotics were given as a precaution while he had no white cells to fight infections .  It was also possible that bacteria from his intestine has been entering his surrounding tissues.  You ask why?  Eli has mouth soars which are caused by the chemo.  This also indicates that he most likely has stomach and intestine sores which would also be caused by the chemo.  He has been grimacing when the doctors feel around his belly which is a good indication.  These sores will eventually heal when the white cell counts increase.

Today, Eli will still be hanging out at the hospital.  His white cell counts have increased from <100 to 400.  Yea!  However, normal levels are above 4,000.  As long has the counts show that they continue to increase, Eli would be allowed to go home.  He also has not had a high fever for a couple of days.  He’ll be here at least one more day, but I’m hoping that he’ll be going home tomorrow.



Playing Xbox with Kinect.


Visit from Alex.

Having fun racing Lego cars on the hospital bed.

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12 Responses to Just Hanging Out

  1. Ellen Schlosser says:

    Continuing to hold all of you in prayer. NEGU!

  2. Uncle Buckwheat says:

    Hey Eli, I hope that you get to go home soon! You are a super hero! I am so proud of you! Keep up the great work! I love you! Uncle Zombie (Tommy )

  3. Julia Westphal says:

    Eli and Alex ❤️

    Hope that camp is a blast for the other 3 kiddos!

    Prayers continue ??❤️

  4. Shirley Delahunt says:

    Tom’s blood type is O negative – universal donor. He gives blood on a regular basis and would be honored if his blood could be given to Eli. Just let us know your needs and how to make this work. Continued prayers for your precious Eli and all your family.

  5. You are doing such a great job mom and dad. Eli is Blessed to because of you both. Keep the faith.

  6. Anonymous says:

    Good thoughts for each of you. Hope you are home filling the yard with activity soon.

  7. Karen says:

    Thanks for the update. So good to hear how well Eli entertains himself. Quite the creative mind. God bless you.

  8. Ed Hansen says:

    What a precious brothers picture, in some ways it reminds me of Ella and Abby on the beach.

  9. Penny says:

    Thank you so much for that information. Eli continues to amaze me. He is such a fighter. So glad he got to visit with Alex as I know he really likes his little brother. Give him healing hugs from Grandma Penny. Love you guys.

  10. Jo-Anne Minoff says:

    Thank you for the update and the details. Jamie, Your family is always in my thoughts. Keep going up white cells!!

  11. Auntie Patti says:

    Hoping you can go home tomorrow. Sending ❤️❤️❤️

  12. Stacy Mak says:

    You guys continue to amaze and inspire me. We think of you often and send our prayers.

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