After spending Friday getting platelets, Saturday in the ER due to medication error and sticky lines, on Sunday very early in the morning, Eli was admitted for fever/low counts. Looks like he’ll be here for a bit as we figure out what is wrong and work on healing.
Eli is in a considerable amount of pain. No longer vomiting, but continues to have diahrrea and severe belly pain that comes and goes. His fever fluctuates between 100s-102s. He has been on “gut rest” since last night which means no eating or drinking to give his irritated intestines/gut a break. The thought is that food & drink irritate it. It’s possible he has mucositis in his stomach lining. (Similar to mouth sores that people often get after chemo but this would be in his stomach) But, another possibility is typhlitis (inflammation of the intestines) He will be having a CT scan in a little while to look for that. He has various antibiotics going through his system right now preventatively. He will be put on TPN (IV nutrition) because we are unable to use his ng tube for nutrition and can no longer give food/drink orally. He will also be receiving a pca (continual pain medication along with a button he can push for a boost) to manage his pain and minimize the peaks. He is getting blood for low hemoglobin.
Now and again he perks up and talks/plays. But today has been pretty much constant cartoons. He is comfortable in bed with his legs drawn up but screams and cries in pain when he has to get out of bed and stand before getting on the toilet. I have to lift him in and out of bed and on and off the toilet extremely slowly because fast movements cause him pain. His counts still remain very low which is part of the problem. He doesn’t have white cells to repair whatever is going on inside his body right now.
Praying for answers, pain relief, and counts to come back. Nervous mama over here.
Lots of hugs and prayers for you guys…
So, so sorry to hear about your sweet babe. I pray that he is pain free and gets to go home soon. I also pray for the rest of Eli’s family as this must wear on everyone. Hugs to all. Love, Lisa
Thinking of you every day. You continue to be in our prayers.
Oh Jamie, I am so sorry to hear about little Eli. We will say extra prayers for him to be pain free soon and for peace in his body. XOXOX
Jamie, what an awful few days! I often think of bringing Connor by to visit; but not sure if he/you’d be up for that.
Sending Eli “rocketfuel” ?healing energy and lots of love to all of you.❤️
Praying for your sweet boy
Praying for comfort and healing for Eily and you too !!!!!! Hang in There !!!!!!!
Hugs….sooooooooooooo many hugs and prayers for that lil kid
Prayers for relief..
Continue to hold Eli and your whole family in prayer. I can’t imagine only pray for you…
My prayers continue for Eli. I pray in particular for the concerns mentioned in this latest post.
Continue to pray for your family. Thank you for the update.
Many people in Beloit are praying for Eli!
Praying for all Eli’s needs to be taken care of. Praying for healing and trusting and strength and perseverance and peace!
Thank you for the update. Sending love and prayers as always.
Sending a humungous hug to you and everyone. ?
Oh hon, I’m so very sorry!!
You guys will be in my thoughts all day. I so wish I could be there to comfort you all.
I have no words. Only hope and prayers.